The Drs: Incurable Batten Disease + Charlotte & Gwyneth Gray


The Doctors: Family Fighting Incurable Brain Disease

Gordan and Kristen Gray were excited every time their young daughter reached a milestone, until suddenly they noticed a change. Charlotte Gray and 4-and-a-half-years-old and Gwenyth Gray is 2-years-old. Charlotte was around 2-and-a-half-years-old when her parents noticed she wasn’t able to do a lot of the things her peers were doing, although she had reached all her early milestones quickly and without a problem. Charlotte was diagnosed with a very rare brain disease called Batten CLN6, for which there is no cure. Kirsten and Gordan were told there was a 25% chance their younger daughter would have the same disease. Gwyneth was tested a week later and was diagnosed with the same brain disease.

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